Recent developments in government welfare reforms have caused confusion and concern, particularly for people living with long-term health conditions like Multiple Chemical Sensitivity (MCS), ME/CFS, and related disorders. Many of our members rely on Personal Independence Payment (PIP) and Universal Credit (UC), so here’s what you need to know.
PIP 4-Point Rule Scrapped – For Now
One of the most worrying proposals – the introduction of a PIP 4-point rule that could have made it harder for many people to qualify for support – has been completely dropped after a wave of public and parliamentary opposition. This means there will be no immediate changes to how PIP is assessed or awarded, either for existing or new claimants.
Changes to Universal Credit Still Going Ahead
Although the Bill has been renamed the Universal Credit Bill, changes to UC are still happening. Starting in April 2026, the health-related element of UC will face a nearly 50% cut and a freeze in payment levels. However, people who already receive Limited Capability for Work and Work-Related Activity (LCWRA) payments by that time will be protected from both the cut and the freeze.
This is important for members whose health conditions (including MCS and ME) currently qualify them for LCWRA support.
Other Proposals Still on the Table
Some other significant proposals have not yet been enacted but could come back in future legislation. These include:
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Scrapping the Work Capability Assessment (WCA)
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Merging ESA (Employment and Support Allowance) and JSA (Jobseeker’s Allowance)
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Limiting access to PIP-linked UC payments for people aged 18–21
These changes will need separate laws and more detail, but they are still being discussed.
What’s Next?
Any long-term changes to PIP will now depend on the findings of the Timms Review, which is set to report in November 2026. This is a wide-ranging review of disability benefits and assessments, and while it promises to involve disabled people in the process, many remain sceptical based on past experiences.
A Step Back – Thanks to Pressure
While the Bill has now passed its final stage in Parliament, the government was forced into several climbdowns thanks to pressure from disabled people’s organisations and campaigners. Dropping the PIP 4-point rule was a major victory, showing that organised opposition can make a real difference.
In Summary:
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No immediate changes to PIP — the 4-point rule has been scrapped.
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UC health element will be cut and frozen in 2026 — but current LCWRA claimants will be protected.
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Bigger reforms are delayed, pending the Timms Review in late 2026.
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The fight isn’t over — but the worst proposals were stopped, for now.
If you’re living with MCS, ME, or a related condition and currently receive PIP or UC, your existing support should remain unchanged for the time being. However, future reforms could still pose challenges, so staying informed and involved is key.
